Hi. I'm so glad to be here. My autistic son is nine, but mentally I'd say he's about six. He's delayed, but he goes to an autism charter school and up to now he's been able to keep up with his grade level. But in the last three months especially, I've noticed that he seems to be plateauing in everything, mentally and physically.
He's fairly high functioning, can take care of his own needs except for bathroom and baths. The other day I was helping him shower and I noticed he's starting to get hair under his arms.
I think that, more than anything else, made me realize how his brain is not keeping up with his body and it really hit me hard. For all these years, I've operated under the hope that, okay, he's delayed, but he'll get there. He might not have a totally "normal" adult life, but eventually, he'll be able to take care of himself, have a job, live away from home ... Now I'm not so sure and I'm really struggling with the idea of having to care for an adult sized six year old for the rest of my life.
I'm sure I don't have to tell this community that yes, I love him very much and he brings us a lot of joy. But, dang, that's a hard thing to face.
Similar experiences anyone?
Hi Your story echoes sentiments. However, there is hope. Your first approach to me is acceptance. You are determine. You care a great deal. Together these are the tools needed for moving forward,. Its called LOVE. There is no greater gift than love. You both are going make it to the various levels. It takes, lots, and lots of perseverance. Falling-down, tears etc. Your main objective, is you will raise-up to all challenges. We or I have been where you are, many times, felt hopeless, you're have our community to support you. You are going to make it.
In reply to alcoolg: